Grappling with Graves #9: Update
It’s been over three years since my Graves’ diagnosis and seven months since I posted this series. I originally intended to only write 8 posts, but I’ve received a few messages asking about my progress, so I want to share what has happened since my last post.
My Thyroid Stimulating Hormone (TSH) has consistently been off and my endocrinologist keeps adjusting my medication. Sometimes I feel like that’s what “practicing” medicine is all about… repeated attempts to get it right. My symptoms have either lessened somewhat or I am just getting used to feeling this way. My biggest challenge is managing my weight, and none of my doctors have the answer. My cardiologist recommended lap band surgery. I cried the whole way home and then took a different path – I found a new cardiologist. I’m hoping to be approved for a bariatric medicine consultation soon.
The good news is that I finished all eight of my Tepezza treatments for my Thyroid Eye Disease (TED). The last one was in November of last year and things have gotten a lot better with that. The swelling is almost completely gone, and my double vision is not as bad. I have new glasses and can even wear contacts for a few days out of the week. I’m praying that I don’t have a recurrence of symptoms, but so far, so good!
In addition to asking me how things are going now, one person asked me to share how my family members have been impacted by all of this. Obviously, they’ve been concerned and worried, but I think they know that I’m strong and determined. My husband, A.J., has been the person most impacted, but he has been such a great support to me. He went to every Tepezza infusion with me and has supported me consistently throughout this journey, allowing me to rest when needed and never questioning what I am feeling. I believe he truly understands how Graves’ Disease has impacted my life.
I’ve joined a few Facebook groups for people with Graves’ and TED, and I’ve found comfort in talking to others who are going through similar struggles. (On a side note, there’s a Facebook group for everything, so don’t struggle with anything alone. Find your people. They are out there.) I’m thankful I can share my experiences with them as well. It makes the battle feel worth it somehow. That, right there, is the silver lining. God is good.
